Conversation training for people living with Parkinson’s and their communication partners | @steven_bloch @pclaySLT @BCAphasia @lynndangerfiel4 @solentSLTEast
University College London
- Tweets 207
- Following 235
- Followers 387
- Likes 272
Very excited to join the Insight into Parkinson's conference from @pd_warrior this year. Come and learn how we are empowering you to have Better Conversations!
17
Are you a #SLT working with people living with #Parkinsons and/ or have an interest in Communication Partner Training? Share your experience & opinions in a group discussing what changes people affected by Parkinson’s could and should make from doing CPT. Message us to take part.
1
1
152
Better Conversations with Parkinson's retweeted
For someone living with Parkinson's, Ramadan can bring a few extra considerations, such as changes to routine, fasting hours, sleep and medication.
If you're Muslim and have Parkinson’s, you may have questions around Ramadan, and how it might affect you: prksn.uk/4qm4DUq
ALT Text image discussing fasting with Parkinson's. The text reads: "Can I fast if I have Parkinson's? If you have Parkinson's, it's important to take your medication on time, every time so your symptoms are well controlled and easier to manage. Taking oral medication is considered breaking a fast during Ramadan." A stylized arrow icon is at the bottom right.
ALT The image contains text discussing what to do if unable to fast in Islam. It states that paying Fidya is allowed for those who need to take certain medications, such as Parkinson's medication, and advises speaking to an Imam for arrangements. An arrow icon is at the bottom right.
ALT Image with text about making a decision regarding fasting when having Parkinson's. It advises consulting a specialist or Parkinson's nurse about the impact of fasting on Parkinson's and suggests seeking spiritual advice from an Imam.
8
7
1,244
Better Conversations with Parkinson's retweeted
The findings from the 2025 UK Parkinson's Audit will be published in early March.
You'll be able to access your Individual Service Report and benchmark your data against the UK results for your specialty.
Keep an eye out for more updates 👀
1
3
5
679
Better Conversations with Parkinson's retweeted
To mark #WorldLewyBodyDay get yourself genned up these important things to know about the second most common type of dementia... lbda.org/10-things-you-shoul…
2
5
77
Better Conversations with Parkinson's retweeted
Parkinson's is the fastest-growing neurodegenerative disease in the world and yet many of us know very little about it.
Prof @foltynie (@UCLIoN) contributes to this awareness raising article in the Telegraph.
telegraph.co.uk/health-fitne…
2
9
10
1,413
10 years of impact 👏👏 ... and keep an eye out for our very own @pclaySLT
🥳This year we're celebrating 10 years of:
🔟 bringing together health and care professionals
🔟 providing resources and education
🔟 improving services for people with Parkinson's and their families.
And we're not stopping. Watch our new film at bit.ly/4l8lWXG
1
91
Some wonderful examples of what people aim to put into practice after @pclaySLT's talk at the @ParkinsonsEN #SLT CEN yesterday
1
1
5
266
It certainly takes a village to raise a complex intervention… a humungous thank you to our #PPI groups who have put so much time, effort and expertise into our Better Conversations with #Parkinsons research. It has been an enormous pleasure working with you all.
1
144
Better Conversations with Parkinson's retweeted
Share your story and make a difference!🗣️
Are you from Pakistan?
Living in the UK?
#dysarthria
Diagnosed with dysarthria? Help us understand how your communication difficulties affect your daily life. Participate and make your voice heard!Click on bit.ly/4c3joUY
@r_a_knight @ShamalaSundaray
8
4
643
Better Conversations with Parkinson's retweeted
"To live a healthy life, is something we all deserve, we need every type of person represented in health research”
We're proud to have partnered on this film showing why we need better representation in health research.
👉🏽 #INVISIBLE out now!
A film exploring why we need more diverse voices involved in health research.
Visit egality.health/be-visible
#BeVisible
10
28
2,600
Another piece of work from our co-production group, this time reflecting on the #PPI process including people living with #Parkinsons and #CommunicationDifficulties 👏:
doi.org/10.14324/RFA.08.1.07
Offer time, choices about how to take part and make sure communication is clear.
2
5
552
Better Conversations with Parkinson's retweeted
Next #BetterConversationsLab #SLT training is in Australia in June hosted by @volkmer_anna and @rtslt! If you're going to @IARC2024 why not tag it on - you know it makes sense 😉 booking link ⬇️ @BCPPAphasia @BCDParkinsons @steven_bloch @CATs_Aphasia
So excited about attending the @IARC2024 conference in Queensland, Australia- just finalised flights & we at @BCAphasia @BCPPartners will be delivering a workshop on communication partner training the day before the conference- super excited! Come along!!! onlinestore.ucl.ac.uk/confer…
5
20
1,901
A brilliant reminder of the importance of including family in #SLT therapy for people living with #Parkinsons. And that it’s complicated – “managing communication strategies” can increase burden. Tailored interventions are needed for different phases. pubs.asha.org/doi/10.1044/20…
5
768
If you know / are someone with #Parkinsons who has real difficulty being understood, who is keen to take part in research in London - please get in touch with ucjulio@ucl.ac.uk
📢Seeking speakers with moderate to severe speech problems due to Parkinson's for a study (@steven_bloch & @PattiAdank) aiming to improve dysarthric speech recognition. Join a 1 hr recording session in London & earn £10. Interested or know someone? DM or email ucjulio@ucl.ac.uk
1
1
312
It’s #WorldParkinsonsDay - up to 90% of people living with #Parkinsons experience changes in communication, with huge impacts on them and their families. We are creating a #SLT intervention with @ParkinsonsUK to help people build lifelong skills for more successful conversations
6
20
921
Better Conversations with Parkinson's retweeted
Today is #WorldParkinsonsDay. There isn't one journey. There isn't one 'day in the life'. We're shining a light on the daily lives of people with Parkinson's and their loved ones. Hear from 6 amazing storytellers here: parkinsons.org.uk/stories
12
22
2,590
Better Conversations with Parkinson's retweeted
V happy to be invited to talk at @SLTAcen event abt Better Conversations communication partner training - a taster for our *new* #SLTA 1 day course @UCLLangCog 10 May w Suzanne, @volkmer_anna & @clairefarring20 - shape course content at the CEN! Can't wait to meet you!
Here is some information about the content of the SLTA CEN event on Feb 14th
To sign up please go to: forms.gle/CL56oG1L2pcatF2g7
Don't forget we are also looking for members for the committee. Please email nationalsltacen@gmail.com if you are interested or want more information.
2
4
6
1,413