Ty Sperle says he felt "insane shock" after learning he'd been cured of a rare genetic disease through a clinical trial using a new gene-editing treatment.
cheknews.ca/b-c-man-cured-of…
#KidsCantWait for a cure. They can’t wait for pain-free mornings, for easier school days, for treatments that don’t hurt. This September, #ArthritisAwarenessMonth, join us in shining a light on what arthritis means for kids + families. 💙 #KidsGetArthritisToo
🚨 Big advances in Juvenile Arthritis care — but kids still can’t wait.
A new @NEJM article shows how biologics are transforming outcomes for kids with JIA. Less damage. More remissions. More hope. 🙌
But serious gaps remain. 👇🧵
📖 nejm.org/doi/full/10.1056/NE…
We’re proud to be a lead patient partner in UCAN CAN-DU, a🇨🇦–🇳🇱 project to personalize JIA treatment.
And in the PAVE Study w/ @Marshall_HEcon, we’re helping advance access, equity & innovation with families at the centre.
🧬 This future is possible — if we build it together.
It takes more than just parent-driven passion to transform kids’ lives. It takes dedicated corporate champions like @KeystoneEnv who are dedicated to making sure JIA is recognized and resourced as a children’s health priority in Canada. #JuvenileArthritis#advocacy#donorlove
We loved collaborating w/ @Our_KidsHealth + Dr. Tala El Tal @CHEO on our first Arabic videos educating families about rare childhood rheumatic diseases incl #FMF#behcets and #PFAPA. @RipudamanMinhas has opened a door to equitable health information that cannot be done alone!
🥳 Join us in congratulating our team's @RipudamanMinhas on being selected as the *2025 American Academy of Pediatrics Equity, Diversity, and Inclusion Excellence Award Winner*! 🎉
@UnityHealthTO@AmerAcadPeds
“A lot of 20-somethings are going out to bars & clubs, whereas I can’t do that anymore. It exhausts me to be out of the house for more than 2h..I prefer a quiet night in with close #friends watching tv or just chatting": buff.ly/MDvye0h via @cafsociety#teenager#spoonie
Pain is more than sensation.
It’s shaped by memory, biology, and psychology.
In this issue of #UofTMed magazine: how we feel pain, how we fight it, and what science is doing to help us move beyond it. bit.ly/4nclDfu
When David Porte's daughter was diagnosed with #JuvenileArthritis at 22 months, he started running for a cure. That led to founding Cassie + Friends, now hosting 14 run/walks across Canada for kids with #rheumaticdiseases
Read more: globalheroes.com/juvenile-id…
May 1 is #NationalPhysiciansDay. On behalf of the entire C+F community, we want to send a huge THANK YOU to the pediatric rheumatologists who take care of our patients. Today, and every day, we are so grateful for all of the work that you do!
@ucan_du@CAPRI_Canada#pedrheum
Be part of the Canadian Arthritis Summer School (CASS), a unique 3-day virtual event bringing together patient partners and trainees. Patient partners and trainees apply here by April 28, 2025: bit.ly/4iZZo9R