The International Alliance of Dermatology Patient Organizations is a global voice for skin patient-centred research, advocacy & support.
Global
- Tweets 2,887
- Following 675
- Followers 2,807
- Likes 2,085
The October #MembersMatter #Bulletin is now available! Members, check your inbox for the full bulletin and discover opportunities to learn, connect and amplify your impact! Not yet a #GlobalSkin Member? Apply to become one at globalskin.org/member-commun….
#Dermatology
16
🌍 GlobalSkin at #ISAD2026 in Beijing! From sharing PRIDD research to strengthening patient partnerships with GADA, we’re amplifying the voices of people living with #AtopicEczema worldwide. Together, we’re driving collaboration and better care! 🤝 #GlobalSkin
39
💜 Oct 20 is Mastocytosis & Mast Cell Diseases Awareness Day!
MCAS and mastocytosis may be invisible, but their impact is real. Everyone deserves to be heard, believed & supported. 💜
📣 Make the invisible visible! 🌐 mastocytosis-mcas.org
#MCAS #Mastocytosis
1
32
🌟 #FollowFriday Spotlight: APPEAP supports people with #psoriasis and autoimmune skin diseases in #Paraguay through education, advocacy & community! 🌐 appeap.com #GlobalSkinMembers
46
📣 Attn GlobalSkin Latin America members!
🎥 Missed our webinar? The replay is here!
Explore “Skin & Mental Health: What We Don't Always See,” featuring expert insights and patient experiences on the link between skin and #mentalhealth.
📩 Inbox for the replay link!
1
37
#GlobalSkin Members, the second #webinar in our #ResearchReadiness Program is taking place November 24, 2026, 9:00–10:00 AM ET | 3:00–4:00 PM CET.
Check your email for the registration link. We look forward to seeing you there!
#Webinar #PatientLedResearch #Dermatology
40
📣 New publication! How can young people with rare diseases become meaningful research partners?
An IRDiRC perspective offers practical guidance for developmentally appropriate, ethical engagement.
🔗frontiersin.org/journals/ped…
2
5
128
🧠 Today is #WorldMentalHealthDay!
Let’s move from listening to action. People with lived experience deserve a voice in shaping mental health services, policies and decisions.
💬 Lived experience is expertise.
🤝 Nothing about us without us.
🔗 who.int/campaigns/world-ment…
1
2
69
🌟 #FollowFriday: @Pachyonychia supports patients, advances research & advocates for better treatments for rare genetic skin disorders. 🌍💙 pachyonychia.org
30
New Members, join us on October 21, 2026, at 9:00 am EDT | 1:00 pm UTC for an online gathering to help you settle into our global community. Check your email for the registration link.
#GlobalSkin #CoffeeChat #NewMembers #Dermatology #Welcome
1
43
We’re proud to see our Member Noel Mudibo from IPPF Kenya featured in The Independent, where he shared his lived experience in an article published as part of the recent launch of the ILDS Skin Observatory study. Read the interview: bit.ly/47B41Dd
@healourskin @ILDSDerm
1
55
Today at #EADV2026, #GlobalSkin co-hosted “Invisible burden, visible impact: Improving mental health outcomes in dermatology” with the EADV Advocacy Task Force, as part of the event's scientific program. Thank you to all the speakers, the Task Force and everyone who attended.
1
59
🌟 #FollowFriday Spotlight 🌟
Meet FUNAPAPSO, supporting people living with #psoriasis through education, advocacy & community support.
💬 Raising awareness. Empowering patients. Improving care.
🌐 funapapso.org
#GlobalSkinMembers #Psoriasis
40
Attending the EADV Congress in Vienna? Don't forget to stop by the #GlobalSkin booth in the Patient Organisations Area & #PRIDD Booth X321 in the Exhibition Hall. We look forward to connecting with you!
#EADV2026 #TogetherForBetter #Booth #Dermatology #EADVCongress
67
#GlobalSkin marked the opening day of the EADV Congress today with its Skin Matters Reception in Vienna, bringing together Members, partners and key stakeholders. We are grateful to everyone who joined us!
#EADV2026 #TogetherForBetter #SkinMatters #Reception #Dermatology
3
112
Today in Vienna, #GlobalSkinEurope brought #Members together for “Patient Data for Better Health”. Thank you to all attendees for sharing their perspectives on putting patient data to work for better healthcare across Europe.
#GlobalSkin #Dermatology #EADVCongress #EADV2026
5
82
Today, September 28, GlobalSkin joins the international community in marking Global CMN Awareness Day and supporting people living with congenital melanocytic nevi (CMN) and their families.
Learn more and help spread awareness: nevus.org/gcmnad
#GlobalSkin #CMNAwareness
54
🌟 #FollowFriday: SNUPA promotes the rights, dignity & well-being of people with albinism in Uganda through advocacy, skin & eye care, education & inclusion.
🌐 Connect with them online: snupa.org/ #Albinism
39
Our September 2026 Newsletter is out now! Check your inbox for your copy! Not subscribed yet? Sign-up for our Newsletter today: bit.ly/4jmuWcX
#GlobalSkin #Newsletter #PatientAdvocacy #Dermatology #SkinHealth
1
51
September is #AlopeciaAwarenessMonth! This September and beyond, let’s raise awareness, build understanding and promote inclusion so everyone affected by alopecia feels seen, heard and supported. Get involved: naaf.org/aaam
#GlobalSkin #AlopeciaAreata #Dermatology
48