IPPOSI puts patient voices at the centre of healthcare & policy. Irish Platform for Patient Organisations, Science & Industry.
Registered Charity: RCN: 20062934
We are delighted to welcome our new CEO, Dr. Laura Brady! 👏 Starting this June, Laura brings over a decade of leadership in health innovation, academic research, & patient advocacy. We are excited for the vision and expertise she adds to the IPPOSI team. ipposi.ie/ipposi-appoints-la…
Are you a parent or guardian of a child or children with a rare disease or undiagnosed condition living in Ireland and Northern Ireland? Consider supporting PhD research around the social and economic impact for families:
healthandagriscience.fra1.qu…
Still time to register to join the All-Ireland Conference on Integrated Care on Wednesday, 26 March at O’Reilly Hall, University College Dublin. Busaries available for patients and public with an interest. Register at bit.ly/4iQ4Zjf@IFICInfo
Interested in health data and the European Health Data Space, join the first in a series of online sessions organised by @quantumcsa on 25 March to learn more. Register at bit.ly/healthdatalabelling1
Great to see these important initiatives - we must keep the conversation going on issues that are important to the public, and to patients, as we seek to modernise our health system and harness the full potential of health innovation!👏 #citizensjury#AIinhealthcare
📢 Help Shape AI in Neurological Healthcare!
Are you living with a neurological condition or caring for someone who is? Share your views in upcoming online focus groups.
✅ Who? Adults (18+) in Ireland
📩 Interested? Email PathAI@rcsi.ie
#PatientVoices#DigitalHealth
The verdict is in! Read the #IPPOSICitizens' Jury report on Artificial Intelligence (AI) in Healthcare- 25 recommendations calling for regulation, public interest champions, ongoing engagement, and more. Well done jurors! #citizensjury#AIinhealthipposi.ie/aicitizensjury/
🌟 Last week, EUPATI co-organised a training session with EUPATI Ireland (@IPPOSI) on the EU HTA Regulation - the first one of 2025🎉
Stay tuned for many more training opportunities on the topic within the year! Want to take part? Register here: bit.ly/41n948l
IPPOSI is delighted to be playing a role as part of this genomics initiative, which involves the Irish public to shape future genomic research. Led by @RCSI_Irl and supported by @roinnslainte and @hrbireland. The Genome of Ireland forms part of a wider public investment by the EU
🚨The Genome of Ireland has launched! Co-led by our Deputy Director, Prof Cavalleri at @RCSI_Irl, this initiative will ensure the genetic diversity of the Irish population is well-represented in the effort to build the European reference genome.
Read more futureneurocentre.ie/futuren…
Are you a patient, patient representative, advocate, or carer interested in the research and development process for new medicines, medical devices, and health technologies? Then consider applying for the 2025 IPPOSI Patient Education Programme today! bit.ly/2025patienteducation
We are delighted to lead two major tasks as part of the new 6-year @IHIREADI project, kicking off today in Madrid. The aim is to enhance patient representativeness & inclusion in Clinical Research - 72 partners from 18 countries, €66.8M funding
ihi-readi.org/