Being 32 years old and having the most advanced form of diabetic retinopathy-in both eyes- is scarier than most people realize. The treatment I have done is by a highly specialized ophthalmologist and vitreoretinal surgeon-but it's still not a cure. What I have done is to help slow down or stop the progression of diabetic retinopathy. One day, I hope we are able to find a cure for type one diabetes, and I hope I'm around for that day.
(please don't tell me how 'easy' it is to manage, or that if I 'just control my blood sugars' I'll be fine). Managing type 1 diabetes is like trying to manually fly a plane when the automatic pilot (my pancreas) completely breaks. You have to make roughly 180 extra decisions every single day that non-diabetics never think about. Every single carb, stressful moment, walk down the stairs, or hour of sleep requires calculated math. It is a relentless mental burden that causes "diabetes burnout."
You can eat the exact same meal two days in a row, take the exact same insulin dose, and get wildly different results because of variables you cannot control. Stress, anxiety, hormones, physical pain, poor sleep, the fucking WEATHER-how hot or cold it is changes how fast your body absorbs insulin.
Non-diabetics don't understand what a blood sugar roller coaster feels like physically. A severe low leaves you shaking, sweating, confused, and fighting adrenaline spikes. A severe high causes nausea, exhaustion, blinding headaches, and "brain fog." You can't just "snap out of it" or "fix it with a snack" without a massive physical and emotional toll.
We are managing an incredibly complex, demanding disease, alongside advanced eye care, neurological symptoms, and mental health challenges. The complications both immediate and long term completely damages the blood vessels throughout your body, and also impact major organs. We are doing an immense amount of invisible hard work every day, So yes, it is reasonable to be tired of people oversimplifying my reality.