Leaving ALS better than we found it #Onward #LiveLikeLou
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The World Series starts tonight, and you know how much we LOVE baseball! ⚾️
Who are you cheering for? 👀 Comment below. ⬇️
Comment 💙 for @Brewers
Comment 💛 for @RaysBaseball
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November is National Family Caregivers Month 💙
To every spouse, child, parent, & friend who has cared for someone with ALS: we see you. We want to hear & share your story.
Share your caregiving journey with us here: bit.ly/4iAXGOm
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Fall cleanup is one less thing for Mark & Sue to worry about, thanks to the kindness of volunteers from the @riponcollege Phi Delta Theta Fraternity. 💙
This weekend, volunteers helped the family with fall cleanup, giving their time to make life a little easier for Mark & Sue.
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Blown away. Thank you to the 446 Iron Phi participants from 50 different Phi Delta Theta chapters who raised $327,961 this September and helped us set a new monthly fundraising record......by more than $142k!
Join us at ironphi.org. We're having a lot of fun!
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Lou’s Crew Spotlight 💙🏃♀️
LLL staff members Emily & Maycee ran a half marathon to leave ALS better than they found it!
Together, they’ve raised over $3,200 this year to support ALS families & fund research. Proud to have them on our team! 💙
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Lou’s Crew Spotlight 💙⚾
Derek is honoring his dad, Tom, who passed away from ALS at 53, by running the Pittsburgh Half Marathon on May 2, 2027!
Derek has raised over $500, and his team, Trotting for Tom, has raised over $5,000 through Lou's Crew! 🏃♂️
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ALS changes so much, but families don’t have to face it alone. 💙
From Quality-of-Life & Holiday Respite Grants to Connect & Serve, Talk to Me, Goose!, scholarships & ALS research, LLL supports families today while investing in a better future for everyone affected by ALS.
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Join Shionogi for a live webinar on The Importance of Multidisciplinary Care and Assistive Technology in ALS.
Register for the session that works best for you:
🔗 October 15: bit.ly/4yf2VrG
🔗 November 5: bit.ly/4yeWy7S
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Lou’s Crew Spotlight 💙⚾
This past weekend, @AUSpartanBase raised more than $1,200 through Lou’s Crew in honor of Shannon Maza, the mother of one of their players, who passed away from ALS.
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Colder days are approaching, & we have what you need to stay warm! From beanies to crewnecks, the LLL Store has it all!
The best part? Proceeds from every purchase go directly toward supporting ALS families & funding ALS research.
livelikelou.org/store
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Meet Manisha Kunala, 2026 Live Like Lou Graduate Fellow at @UMassChan! 🔬
Manisha is investigating whether changes in the body’s metabolism could help detect ALS before symptoms appear.
Learn more about Manisha's research: livelikelou.org/news/2026gra…
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Meet Aishwarya Nambiar, Live Like Lou 2026 Graduate Fellow at @WashU! 🔬
Aishwarya is exploring a new approach to ALS research: restoring TBK1 protein levels that can be depleted in certain forms of ALS.
🔗: livelikelou.org/news/2026gra…
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In the 1937 World Series, Lou Gehrig hit the final home run of his postseason career. 💙
That season, he batted .351 with 37 home runs and 158 RBIs, leading one of baseball’s greatest teams and at the height of his career.
📸: Rich Mueller / Sports Collectors Daily
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Trivia Night 2026 was a blast! 🎉
Together, we raised funds for ALS research supporting early-career scientists at Indiana institutions, tackled trivia questions, enjoyed great food, bid on silent auction items, &, most importantly, had a great time with the LLL community.
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Two silent auction items are still up for grabs, but not for long! ⏰ Bidding closes TODAY at 2 p.m. EDT.
🏈 Notre Dame Experience #2
🎟️ Indiana Adventure Passport
Bid now at livelikelou.org/trivianight. Bidding closes at 2 p.m. EDT today!
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Brooke Eby was a pure soul who truly lived like Lou.
Diagnosed with ALS in March 2022, Brooke faced a disease that can take your voice & make it easy to retreat from the world. Instead, she chose to be bold. She shared her story, used her voice, & paved the way for so many. 💙
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We’re celebrating a meaningful milestone in ALS research. 🧬
Researchers found that Ulefnersen significantly improved functional impairment and survival in the Phase 3 FUSION trial for people living with FUS-ALS, a rare genetic form of ALS. 💙
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One community. One voice. One big win for ALS. 👏
From the House to the Senate, the ACT for ALS has cleared both chambers and is now headed to the President’s desk.
Together, we are all leaving ALS better than we found it. 💙
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Live Like Lou couldn’t be more grateful that the ACT for ALS has passed! We’re grateful to the ALS organizations & the entire ALS community who worked tirelessly to make this possible. Together, we’re creating a future where families affected by ALS have more hope & more options.
ACT for ALS has passed and will become law!
Take a second with that. The House passed it. The Senate passed it. And now it’s on the way to the President’s desk to become law—because of OUR advocacy.
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Live Like Lou couldn’t be more grateful that the ACT for ALS has passed! We’re grateful to the ALS organizations & the entire ALS community who worked tirelessly to make this possible. Together, we’re creating a future where families affected by ALS have more hope & options.
ACT for ALS has passed and will become law!
Take a second with that. The House passed it. The Senate passed it. And now it’s on the way to the President’s desk to become law—because of OUR advocacy.
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