Patient Advocate and caregiver Elizabeth SantaCruz eloquently shares her frustration and persistence as a parent while seeking answers during her daughter Miah’s #lupus diagnostic journey at the National Academy of Sciences, Engineering and Medicine’s Advancing Diagnostic Excellence in Pediatrics workshop today. “We were not being seen, we were not being heard!” #LADAOrg

💜 Honored to be invited as a speaker representing @LADAOrg at the National Academies of Sciences, Engineering, and Medicine, California Proud to bring the voices of patients, parents & caregivers to a place where conversations can help shape the future of healthcare #Lupus 🦋

💜 LIVE WEBINAR | Join the Conversation! Partners in Health: Building Stronger Patient-Care Team Partnerships 📅 October 26 | ⏰ 6 PM PT 📍 Facebook & YouTube LIVE @Looms4Lupus Join rheumatologist Dr. Samy Metyas, patient advocate Elizabeth Anderson, and caregiver Elizabeth Santa Cruz for a real conversation about strengthening partnerships between patients, caregivers, and healthcare teams. 📥 Plus, access downloadable tools in English & Spanish. Whether you live with lupus, support someone who does, or care for someone with a chronic illness, this conversation is for you. 💜 #LoomsForLupus #PartnersInHealth #LupusCommunity #PatientAdvocacy #HealthEquity

Invisible Disabilities Awareness Week Oct. 18 - 24th 💜🦋💜 #Lupus #Lupuschat #LupusAwareness

🎉Hey #LupusChat fam, join us in wishing our founder & CEO @TiffanyAndLupus a Happy Birthday! Tiffany, we appreciate your advocacy and passion. We hope you’re having the time of your life. You deserve nothing short of the joy you’ve brought to the lives of all in the community.

🎉Hey #LupusChat fam, join us in wishing our founder & CEO @TiffanyAndLupus a Happy Birthday! Tiffany, we appreciate your advocacy and passion. We hope you’re having the time of your life. You deserve nothing short of the joy you’ve brought to the lives of all in the community.

Today we’re celebrating Carly! Join us in wishing our incredible co-host, @SynceNerd_Carli, Happy Birthday! 🎂🎉 Her brilliance, passion, & commitment to our community are woven into the heart of #LupusChat. We wouldn’t be here without her. Happy Birthday, Carly! We love you! 💜

It’s not too late to register for our Lupus & You event tomorrow night on Practical Tips for Your Journey. Listen as experts and lupus warriors discuss practical strategies for navigating daily life with lupus. Register today! ⬇️ buff.ly/ykTmTDe

Thank you so much Tiffany, it is all of us working together, collaboration is key! #LADAOrg

💜 August is #NationalWellnessMonth - a reminder that taking care of your mental and emotional well-being is an important part of overall health. For people living with lupus, stress may contribute to flares and worsening symptoms. Learning healthy ways to manage stress can be one way to support your well-being. Explore practical stress management tips and resources: bit.ly/3RblzS3 #NationalWellnessMonth #Lupus #LupusAwareness #LupusResearch

Such a remarkable donation, thank you for helping fund lupus research! 💜

Kudos to #Lupus Advocates Elizabeth SantaCruz and Miah Andrade for sharing their journeys and their desired outcomes for a meaningful treatment during the panel at @FDA Accelerating Product Development for #PediatricLupus #PatientVoice @CaringForLupus @carrainc

Meaningful insights shared by all #patient and #carepartner advocates on risk/benefit assessments of new treatments during the clinical trials panel at the @FDA Pediatric SLE Workshop. Thank you McKenna, Chloe, Elizabeth, Miah and Nia for your honesty and courage!

Bravo to the @FDA, @CARRA and the passionate #patient and #carepartner representatives Miah, Elizabeth, McKenna, Chloe and Nia, and researchers for making the FDA Workshop to advance pediatric #lupus drug development a success! Mike drop! #LADAOrg

That’s a wrap! Two days of dynamic data and lively discussions around Accelerating Product Development for Pediatric Systemic Lupus Erythematosus (SLE). We are hopeful that this can lead to advancement and approval of more treatments for youth with Lupus.💜 #LupusChat #LADAOrg

So honored to work on this project with such amazing and passionate advocates! Thank you @CaringForLupus and Miah and @Annezab 💜

🔥 PANEL: Future Direction of Clinical Trials, moderator: Dr. Raj Nair. Panelists: Drs. Caroline Benichou-Auriche, Jordan Roberts, Kalyanee Appanna, Sarah Ringold, Stephen Balevic, Hermine I. Brunner, Stacy Ardoin, Lynne Yao, featuring Patient Advocate, Nia Cooper. #LupusChat

Dr. Rebecca Sadun presented on the Extrapolation of Efficacy from Adults: Gaps in Knowledge and Remaining Uncertainties #LupusChat

Patients and Care Partners, McKenna Bowes, Chloe Raymond, Nis Cooper, Elizabeth SantaCruz, and Miah Andrade for the final patient panel of the day, Patient/Family Panel: Risk Tolerance and Enrollment in Clinical Trials moderated by Dr. Stacy Ardoin #LupusChat #LADAOrg

Dr. Sule Yavuz (@AstraZenecaUS) shares the industry perspective from global pediatric studies, during the Lessons Learned from Conducting Clinical Trials in Pediatric SLE session. #LupusChat