1/5 Happy 7th 🌟#PoTSAwarenessDay🌟 Postural Tachycardia Syndrome (PoTS) can be a life altering and debilitating health condition. #PoTS is an abnormality of the autonomic nervous system, which controls all bodily functions that we don’t have to think about. Individuals experience orthostatic intolerance, which means that they mostly experience symptoms when in an upright position. The majority of people with PoTS also have other related medical conditions such as hypermobile Ehlers-Danlos Syndrome, allergies, Long Covid and ME/CFS- all of which can make symptoms worse. If you are new here please take the time to view the image thread below to learn some basics about PoTS: 🟣 Symptoms 🟣 Tests/Investigations/Diagnosis 🟣 Treatment- lifestyle changes & medication View our website to learn more about symptoms: potsuk.org/about-pots/sympto… #MedTwitter #TeamGP #ChronicIllness #LongCovid #InvisibleIllness #MECFS #EDS #MCAS @DrSdeG @elisaperego78 @DrSarahJarvis @mermhart @cpgale3 @LongCovidAdvoc @LC_Physio @MEAssociation

✨31 days of PoTS✨ #PoTSAwarenessDay DAY 25- LIGHT UP FOR PoTS Today we’re turning the world purple for #PoTS! Find out which buildings and landmarks are lighting up near you! Visit our website, check your region and see where you can go to show your support: potsuk.org/buildings-lightin… Get involved with Light Up for PoTS. ▪ Visit a purple-lit landmark ▪ Take a photo with a participating building ▪ Wear purple ▪ Light up your home ▪ Encourage your workplace, school or community to get involved Share your photos and help us make PoTS visible. Let’s turn social media purple! Tag @UKPoTS and use #LightUpPurpleForPoTS #PoTSAwarenessMonth #LifeWithPoTS

TOMORROW is ✨#PoTSAwarenessDay✨ Please join us to raise awareness by sharing our posts, and by sharing your own stories & experiences of #PoTS. Tag @UKPoTS 💜

PoTS UK is proud to support the 1st British Autonomic Society Conference! We’re delighted to be supporting this important event next week and sponsoring a research abstract to help advance understanding of autonomic conditions. Chair of PoTS UK, Dr Lesley Kavi, will also be presenting on “Supporting Clinical Care Across the Patient Journey” highlighting the importance of support and understanding at every stage of a person's journey with #PoTS and other autonomic conditions. britishautonomicsociety.co.u… Research, education and collaboration are vital to improving recognition, diagnosis and care. We’re proud to play a part in supporting the healthcare professionals and researchers working towards a better future for everyone affected by #PoTS. #BritishAutonomicSociety #PoTSResearch #AutonomicConditions #PoTSAwarenessDay #MedTwitter #MedEd

✨ 31 days of PoTS ✨ DAY 24 - THEN & NOW Take a look back. How has your life changed since the beginning of your #PoTS journey? Share a photo from then and one from now- and tell us what’s changed. Maybe it’s your understanding of PoTS, symptom management, confidence, resilience or outlook. Celebrate how far you’ve come. Tag @UKPoTS and use #PoTSAwarenessMonth #LifeWithPoTS

✨ 31 days of PoTS ✨ DAY 23- EXPLAIN PoTS IN ONE SENTENCE You have ONE sentence to explain #PoTS to someone who has never heard of it. What would you say? “PoTS is…” Keep it simple, serious, personal, funny or creative. What’s your one-sentence explanation? Tag @UKPoTS and use #PoTSAwarenessMonth #LifeWithPoTS

Thank you so much to everyone who joined us for our first #PoTS stream-a-thon last Saturday! To all the streamers who gave up their time to take part, and to everyone who generously donated❣️ Combined, over £1,500 was raised! 🫶 justgiving.com/campaign/pots… #Twitch #Streamers #Charity #Fundraising

CAN YOU HELP US CAPTURE THE PURPLE GLOW THIS SUNDAY? 💜 This Sunday, 25th October, buildings and landmarks across the UK will light up purple for PoTS Awareness Day, and we need your help! Do you live near any of these locations? 📍Bradford City Hall 📍Burnley Clock Tower 📍Doncaster Mansion House 📍Nottingham Council House 📍Any buildings in the Perth and Kinross Council area 📍Any buildings lighting up on the Isle of Wight 📍Twin Sails Bridge 📍Whitehall Hartford Local media outlets are keen to receive photographs of these landmarks lit up purple, helping us raise awareness of #PoTS and show the impact of our awareness campaign. Can you help? If you're nearby, we'd love you to take a photo of the building or landmark lit up purple on Sunday and share it with us! Every photo helps us spread the word and raise awareness of PoTS in local communities. 📩 Please send your photos to denise@potsuk.org. Thank you for helping us make PoTS visible this Awareness Day! #PoTSAwarenessMonth #PoTSAwarenessDay #LivingWithPoTS #LightUpForPoTS

✨ 31 days of PoTS ✨ DAY 22 - PoTS IN REAL LIFE Sometimes you have to laugh at the everyday situations #PoTS creates! Share your most relatable PoTS moment. Try: “You know you have PoTS when…” ▪ A funny POV ▪ A meme ▪ An unexpected sitting-down moment ▪ Something you now carry everywhere ▪ A funny misunderstanding If you know, you know… Tag @UKPoTS and use #PoTSAwarenessMonth #LifeWithPoTS

💜 THIS SUNDAY IS PoTS AWARENESS DAY! 💜 This Sunday, 25th October, buildings and landmarks across the UK will be lighting up purple to shine a spotlight on Postural Tachycardia Syndrome (#PoTS)! HELP US SPREAD THE PURPLE WAVE! 📍Find out which buildings and landmarks are lighting up near you! Visit our website, check your region and see where you can go to show your support. 🔗 potsuk.org/buildings-lightin… ▪ Know of a building that's lighting up but isn't on our list? Tell us in the comments below so we can help spread the word! ▪ Visiting a purple landmark this Sunday? Take a photo, share it on your social media and tag PoTS UK, or email your photos to denise@potsuk.org. 💜 Let's turn the UK purple for PoTS! Every photo, share and conversation helps raise awareness of a condition that affects so many lives. #PoTSAwarenessDay #PoTSAwarenessMonth #LivingWithPoTS #LightingUpForPoTS #RaisingAwarenessOfPoTS

Thank you, Dr Amir Khan, for raising awareness this #InvisibleDisabilitiesAwarenessWeek! He speaks of what he's learnt from his patients and the daily reality of having invisible symptoms 💜 We know this will resonate with many people living with #PoTS and other invisible illnesses. Please share to help raise awareness of how PoTS can affect everyday life, often in ways that others can’t see. #PoTSAwarenessMonth #InvisibleDisabilitiesAwareness #InvisibleIllness instagram.com/reel/DewBqgBoc…

Join a PoTS UK Online Peer Support Group TODAY! TODAY’S SESSIONS – Wednesday 21st October 🕐 Afternoon Session – 1pm Book your place: eventbrite.co.uk/e/afternoon… 🕖 Men Only – 7pm Book your place: eventbrite.co.uk/e/men-only-… Living with #PoTS can sometimes feel isolating, but you don’t have to face it alone. Our online peer support groups are a chance to connect with people who understand what life with PoTS can be like. Share experiences, exchange understanding, or simply listen and know you’re not alone. #LivingWithPoTS #PeerSupport #PoTSAwarenessMonth

HUGE congratulations to our Great South Run heroes! A huge well done to Alex, Martin, Rebecca, Sam and Tom for completing the #GreatSouthRun @Great_Run last Sunday! 🏃🏅 Each of our fantastic runners took part because of their personal experiences of being close to someone with #PoTS. They wanted to raise awareness of how PoTS has affected people they love, while helping to make a difference to others living with the condition. Together, they have raised nearly £3,800 for PoTS UK! We are incredibly grateful to Alex, Martin, Rebecca, Sam and Tom for their dedication, generosity and support. Thank you for taking on this challenge, sharing your reasons for running and helping us raise vital awareness and funds for PoTS UK. You should all be so proud of what you have achieved! #GreatSouthRun #PoTSAwareness #Fundraising #ThankYou

✨ 31 days of PoTS ✨ DAY 21 - MY MOBILITY AID Mobility aids can help people with #PoTS stay independent and take part in everyday life. Do you use one? Share your: ▪ Wheelchair ▪ Rollator ▪ Walking stick ▪ Stool ▪ Other mobility aid Tell us how it helps you. Using a mobility aid isn’t giving up- it’s finding what works for you. Tag @UKPoTS and use #PoTSAwarenessMonth #LifeWithPoTS

PREMIERE: A LIVE Q&A WITH PoTS UK! Join us *tomorrow* at 2pm Wednesday 21st October for a special Q&A from our first-ever Stream-a-thon! During the event, The Messy Magpie chatted with Jo, Denise and volunteer Emily about: 💜 What PoTS UK does to support the PoTS community 💜 How they got involved with the charity 💜 Fundraising and raising awareness 💜 The work of our staff and volunteers Want to find out more about PoTS UK? Tune in and get to know the people behind the charity! Watch the Q&A here: piped.video/oBSdtoaRXMs?si=UeZj… Support our fundraising! You can donate to our Stream-a-thon JustGiving page here: justgiving.com/campaign/pots… Thank you to everyone who supported our first-ever Stream-a-thon and helped us raise awareness of #PoTS! 🖥️ Missed it? You’ll be able to catch up on our YouTube channel after the premiere. #PoTSAwarenessMonth #Streamathon #FindOutAboutUs #Premiere

✨ 31 days of PoTS ✨ DAY 20- A DAY IN MY LIFE What does life with #PoTS actually look like? Show us your day — from morning to bedtime. Share: ▪ Photos ▪ Short clips ▪ A timeline ▪ A voiceover Whatever works for you. Remember: there’s no “typical” day with PoTS. Tag @UKPoTS and use #PoTSAwarenessMonth #LifeWithPoTS