1st came Endo What?...then premiered Below The Belt, now we continue to mobilize for change as PROJECT ENDO.
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A huge thank you to @katetolo for sharing your endometriosis journey. 💛 We’re cheering you on and we're excited to follow along as you share what comes next!
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Perhaps—and hear us out—we could center the people actually living with endometriosis in endometriosis research? Revolutionary concept, we know. 💛
Repost from @sophiegarrad
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Shoutout to the partners who pick up everything we drop, make sure we’re fed when cooking feels impossible, and show up without hesitation on the really painful days. ❤️
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As Dr. Iris Orbuch explains, patients deserve care that looks beyond simply quieting symptoms and takes their pain seriously enough to investigate what’s actually happening in their bodies.
Repost from @iriswings
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Save the date! 💛
The Endo Co. is hosting its next “We Are 1 in 10” (open to the public) patient support group this Thursday, September 24 at 7:30 PM EST / 4:30 PM PST.
Interested in joining? Visit theendo.co/endo-support-grou… or head to the link in @theendo.co bio to sign up.
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Chronic illness really said, “Consistency? Never heard of her.”
One day you’re functioning like a reasonably assembled human. The next, your body has launched a completely new side quest with absolutely no instructions.
Repost from @dear_chronic_pain
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Diagnosis still takes an average of 6–10 years. That can mean years of unexplained symptoms, disrupted education and careers, missed experiences, and trying to build a life around a condition that has yet to be recognized. We deserve more. #thinkendo
Repost from @gwencrabb
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May your healing journey be fueled by spite, good care, and the kind of confidence medicine often reserves for being spectacularly wrong.
We see you and you've got this! 💛 @chronically_mo
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Living with endo does not mean someone is always visibly suffering. There can be joy, connection, and beautiful moments alongside a disease that can be painful and exhausting.
Both are real.
Repost from @_sophia_marlene
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Pain this severe should never be normalized. When we dismiss it as something women are expected to endure, we delay care, minimize suffering, and allow generations of patients to believe their pain isn’t worth investigating.
Repost from @ditto.daily
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Plot twist: we’ve apparently been overcomplicating this whole chronic illness thing. 🙃
Repost from @chronic4u
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This Labor Day, we’re recognizing the work that often goes unseen.
Living with a chronic disease can mean managing pain and other symptoms while still showing up for work, school, family, and the parts of life that matter to you.
We see you and you matter. 💛
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Why Endo What? Shannon Cohn shares the story behind the name of her first film and why storytelling has been such a powerful tool for closing the gap between what is known about endometriosis and the realities of those affected by it.
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We love an informed provider! 💛
"You don't treat endometriosis by removing the uterus. You treat endometriosis by removing the endometriosis."
Repost from @drliu_endometriosis_surgeon
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Six to ten years is a long time to wait for answers, especially when symptoms are already affecting daily life.
The University Health Initiative is working to change that by giving campuses the tools to shorten the path to appropriate care.
Learn more at thinkendo.org/university
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Chronic illness doesn’t only affect the person living with it. And sometimes, one of the hardest parts is carrying the weight of knowing that.
Repost from @life.with.chrissie
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Today is your last chance to catch Endometriosis: The Musical! 🎭💛
📍 Gilded Balloon Patterhouse (Downstairs), 4pm
Repost from @endomusical
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When you know something is wrong, but getting an actual answer somehow becomes your full-time job. The appointments. The searching. The second opinions.
People with endometriosis shouldn’t have to work this hard just to receive care.
Repost from @essi.endometriosis
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“I have endo and I’m mad at the government” feels pretty appropriate.
#excisionisthegoldstandard
Repost from @grlwithbangs
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