International Kidney Cancer Coalition (IKCC) is the only global collaboration of patient groups working to reduce the burden of kidney cancer.

Global, based in Amsterdam
🧬 Interested in cancer genomics and prevention? 📅 Apply by 16 November 2026: buff.ly/eS5oNNM
1
1
Join the Cancer Genomic Epidemiology course (15–18 March 2027) at the Wellcome Genome Campus, UK, to explore how genomic and epidemiological research can help us understand cancer causes and inform prevention strategies. #CAGenEpi2027
- Nofer Institute of Occupational Medicine (NIOM) - Maria Sklodowska-Curie National Research Institute of Oncology (MSCNRCO) - IRCCS Neuromed Mediterranean Neurological Institute (NEUROMED) - UiT The Arctic University of Norway (UiT)
1
27
- Pancreatic Cancer Europe ASBL (PCE) - Imperial College of Science, Technology and Medicine (Imperial) - The Chancellor, Masters and Scholars of the University of Oxford (UOXF)
29
IKCC Kidney Cancer retweeted
Calling all #KidneyCancer patients, carers, and survivors to share their experience in the @IKCCorg Global Patient Survey. Just 15 minutes to help improve the lives of patients in worldwide. bit.ly/IKCC_Kidney_Cancer_Gl… #AcceleratingCures
2
2
126
IKCC Kidney Cancer retweeted
Please help us by completing the @IKCCorg Global Patient Survey. The more opinions and experiences we have from #kidneycancer patients and carers in the UK, the more evidence we'll have to shape services to support families in the future. To the survey: actionkidneycancer.org/.../t…
1
1
67
IKCC Kidney Cancer retweeted
🇪🇸 #ESMO26, one week later... What’s Up about #RCC?? 📈 Still strong benefit with adjuvant pembro therapy! @DrChoueiri @CPRT65 @tompowles1 💉 Vaccines towards advRCC @BraunMDPhD ➡️ Challenges for ADCs in RCC: the barriers @YujiMiura5 ☢️ The optimal management of Oligo-RCC @ShankarSiva @DrIacovelli 🧬 Proteogenomics, metastatic patterns, and future therapeutic vulnerabilities 💊 @FudanUniversity And Litespark 011, 012, Care 1, Rampart, XmAb819… @myESMO @OncoAlert @IKCCorg @KidneyCancer @kcCURE @kidneycan
1
8
18
1,202
🌍 Why is the IKCC Global Patient Survey on Kidney Cancer important? The survey helps us better understand the experiences of people affected by kidney cancer around the world. Every experience helps build a better understanding: buff.ly/1lpfETh
1
2
73
It aims to: 🔹 Understand how patient experiences are changing over time. 🔹 Identify differences in experiences across countries and regions. 🔹 Highlight best practices and areas where needs are not yet being met.
1
20
By gathering perspectives from patients and carers worldwide, we can build a clearer picture of what is working, where improvements are needed and how kidney cancer care can be better for everyone. #KidneyCancer #GlobalPatientSurvey #IKCC
20
🌍 The Global Patient Survey 2026 is making great progress! More than 1,500 patients and carers have already taken part, bringing us halfway towards our target! 📣 Haven't taken part yet? Have your say: buff.ly/1lpfETh
1
1
96
Five countries – China, Korea, Turkey, the USA and Japan – have already reached the number of responses needed to receive a country report. Let's keep going! Every response helps us better understand the needs and experiences of people affected by kidney cancer.
37
🔬 Summary of Kidney Cancer Highlights from ESMO 2026 What were the key takeaways from this year's European Society for Medical Oncology (ESMO) Congress? 📖 Read the full summary: buff.ly/YPGrLDz
1
2
156
This report explores important updates in kidney cancer research, including new treatment combinations, immunotherapy, potential biomarkers and advances in patient care. #KidneyCancer #ESMO2026 #KidneyCancerResearch #IKCC
43
💚 Your experience matters. Help make a difference! The IKCC Global Patient Survey on Kidney Cancer is still open! Take part today and have your say: buff.ly/1lpfETh
1
1
4
599
Spend just 15 minutes sharing your experience and helping us better understand the needs, challenges and priorities of people affected by kidney cancer. Every response counts. Together, we can make patient voices heard and help shape the future of kidney cancer care.
1
26
🗓️ There's still time to share your experience. The survey is open until 20 November.
22